Leigh Ann Bray discussed "Health-Related Quality of Life and Body Image in Adults with Cystic Fibrosis," on March 28, 2018 with 11 PTF members in attendance. The session provided a wealth of information on a topic not often discussed by women with CF or even at routine CF clinic visits. Here are some of the highlights.
- Coping and Health in CF Adults questionnaire was submitted to 123 participants to better understand gender differences and perceptions of quality of life. Then 30 post interviews of 15 men and 15 women were conducted.
- Females report lower quality of life but males have poorer body image.
- Negative body images increases anxiety and depression.
- Women discussed med (steroids, orkambi) use as causing gain weight that affected body image along with GI issues causing bloating or bigger stomach.
- A third of the sample were overweight; overweight patients had worse body image.
- Men see scars as a negative; women see scars as an accomplishment.
- Sometimes partners/spouses help more with body image issues.
After the meeting, 28 PTF members took a survey indicating their top three body image topics. Here are the top three topics submitted to the Research Advisory Panel:
1. What interventions can help women with CF who struggle with body image?
2. In what ways do CF care providers influence body image for CF women?
3. How do issues other than weightlike: barrel chest, large rib cage, skin issues, and finger clubbing affect the body image of women with CF?
Talking about these issues is the first step to making positive changes. Thanks to everyone who participated by sharing their insights and personal stories.